Mum’s health seems to plateau for six months or so and then, suddenly, something that she has been managing becomes impossible for her. About six months ago she stopped being able to get into the bath. My parents shower is over the bath so that is impossible too. I didn’t know that this was an issue, my dad didn’t volunteer the information but it became very apparent that Mum was not as clean as she should be. A few years ago the Occupational Therapist visited and installed handrails all over the house, including the bathroom but, even so, Mum can’t now climb over the side of the bath. Like many elderly people, she suffers from urinary incontinence and, although the washing machine is always on, Mum herself isn’t washing the parts of her body that really need cleaning. Incontinence pants such as Tena Lady are very expensive, they aren’t available on the NHS but the district nurse did bring some pads round. They are so cheap looking that they don’t even come with an adhesive strip and I don’t think Mum has the dexterity to use them correctly. We ordered some incontinence pants from Amazon but I’m not convinced Mum will use them, in fact I am sure she won’t.

I don’t come from a very open family and definitely would not feel comfortable giving Mum an intimate wash and neither would Dad. I bought some Water Wipes for her to use but the pack remains, unopened, in the bathroom and they wouldn’t be a long term solution anyway. I have been trying to persuade Dad to engage a carer but he just wouldn’t agree. He has a gardener come a few times a year and Mum constantly tells her to go home and she also constantly tells me when I visit “go home, your husband will be wondering where you are”. I know that Dad is worried about her being difficult with having a stranger come into the house and helping her but we are out of options. I tell Dad that if I were in Mum’s position I would want my family to ensure I was kept clean and we are letting her down by not doing so just because we are afraid of a tantrum. Finally he rings Social Services, we had been waiting for a referral from the psychiatrist who diagnosed Alzheimer’s but that never materialised, and they pay my parents a visit.

Annoyingly I couldn’t be there when Social Services arrived because I was working but they assessed my parents needs and put them in touch with Crossroads., a charity that supports unpaid carers. The very next day a woman from Crossroads visited my parents and spoke to them about any benefits they are entitled to such as Carers Allowance and filled out the form for a council tax exemption. Two days after that Dad had to go for an Xray as he hurt his shoulder . I was unable to get time off from work at such short notice. Dad arranged hospital transport and a volunteer from Crossroads offers to sit with Mum. Dad’s appointment was at 3pm but he still hadn’t been seen at 4.45pm and the carer rang him to say she had to leave. Fortunately I had finished work and didn’t have to collect my son as I usually do at that time so I rushed around to their house. Then Dad rang to say that hospital transport had forgotten him! The nurse told him he should have booked a morning appointment if he wanted to use that service. Poor Dad it had all been arranged that morning, the transport coordinator was well aware of his appointment time, not the most confidence inspiring start to accepting other people’s help. In the end he called a taxi. An expensive solution.

When I arrived at my parent’s house Mum told me to leave before I had even taken my coat off. I asked the volunteer how things had gone but she understandably rushed off without saying much. I made Mum a cup of tea and Dad was home about an hour later. So we learned that we have to book a carer/volunteer for much longer than is necessary in the case of hospital appointments and that hospital transport can’t be relied on.

Thank you for reading,

Samantha

Cover Photo by Pawel Czerwinski on Unsplash